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PD SELF + Sogolytics

“The solution has greatly increased member engagement as well as our ability to do reporting and demonstrate program success”


Initially founded in 2013, PD SELF is a non-profit organization that runs the Parkinson’s Self-Efficacy Learning Forum - a national program for patients recently diagnosed with Parkinson’s disease. The program is focused on equipping patients and their care partners with the tools and principles needed to adopt healthcare behaviors that positively influence effective disease management and quality of life.


As the program expanded from being just a small clinical trial to serving 17 communities across the United States and beyond, it became clear that PD SELF needed a multi-faceted yet cost-effective listening and assessment platform that could meet their unique needs to engage participants, increase response rates, and analyze data to evaluate program outcomes and inform future enhancements.


Sogo provided PD SELF with an intuitive experience management platform with personalized support and expert advice on increasing survey and assessment efficiency, boosting their member engagement and response rates. “The Sogo team is fantastic (and I don’t say that lightly),” says Eileen O’Reilly, Chief Operating Officer at PD SELF. “I could ask questions, learn, and gain confidence in my surveys - they took the time to understand our unique use of the platform, review our projects question by question, and provide written recommendations. We were able to improve the design and distribution tactics of our survey and assessments and achieved excellent results by doing so.”

Leveraging automation features such as rules and alerts, tracked participation, and automatic reminders, PD SELF continues to efficiently engage program participants, even as their reach increases nationally and internationally.

It is extremely important that the PD SELF program is able to show statistically their impact on patients’ quality of life, including specific outcomes such as reduced emotional distress or reduced number of doctors’ visits. Eileen has said that using Sogo has greatly increased her ability to conduct surveys efficiently, do reporting, and make data-driven conclusions. “I am a data geek,” she explained. “I get frustrated when things aren’t intuitive, but the Sogo platform is definitely as intuitive as it could get.”

“I would highly recommend Sogo because it’s cost-effective, exceptionally supported, intuitive, and has excellent reporting features. For us, the solution has helped to greatly increase member engagement and demonstrate program success.”

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